As Parent Carers we are on a special needs journey, and whilst there are challenges we share, we also know there are huge pluses to having beautiful children such as our own, and these benefits can make our hearts swell with love.
Our community told us that the old South Glos Council Local Offer did not work for them, was unhelpful and that they couldn’t find the information that they needed to access. We listened to what you had to say and worked co-productively with South Glos Council to build a Local Offer that works better for you, our community.
So we have booked a meeting with Nick Lowe, Service Manager, 0-25 Disability Services.
A recent post about the £150K of reclaimed from families who use Direct payments on our closed Facebook group saw a massive 113 comments in response. We could really feel the exasperation many of you feel with many posts echoing the same experiences and challenges over and over again.
We have had a number of comments from our families about concerns and frustrations they have had with school and college transport
We know how stressful this is for families and especially how it can really cause or has caused already massive anxieties for our children.
We hear from so many of you about what isn't working well with the EHCP annual review process, one huge bugbear is poor communication. The local authority with our help is looking at all the issues we are raising about what is not working well and breaking down all the stages of the process to see: