Many of our community have had experience of difficiculties with school attendance and school exclusions in all their various forms ranging from short-term, permanent, reduced timetables to families feeling as though they have no other option but to remove their child from their education setting and home school.
Our community told us that the old South Glos Council Local Offer did not work for them, was unhelpful and that they couldn’t find the information that they needed to access. We listened to what you had to say and worked co-productively with South Glos Council to build a Local Offer that works better for you, our community.
So we have booked a meeting with Nick Lowe, Service Manager, 0-25 Disability Services.
A recent post about the £150K of reclaimed from families who use Direct payments on our closed Facebook group saw a massive 113 comments in response. We could really feel the exasperation many of you feel with many posts echoing the same experiences and challenges over and over again.
You have fed back to us through our surveys that contacting the 0-25 team has been extremely difficult. We can proudly say that thanks to the hard work of our parent reps attending meetings, distributing our reports and asking for the improvements that our community need and want to see, the 0-25 service now has a duty line number to call to speak to a 0-25 team member.
We know how this review has impacted some members of our community, as parent reps ourselves we have been to some of the engagement meetings held through September and of course, we had our meeting over the holidays that you can read about here.
Following the news of the propsed Resource Base consultation we knew that we had to be heard in this process and that any changes needed to be born out of co-production, engagement meetings and a consultation process that includes everyone who will be impacted by any changes as it reaches beyond parent carers to services and teachings staff amongst others.
We have won a national award for Excellence in Parent Carer Participation. We were nominated as part of CONTACT’s ‘Together at 40’ celebrations, and were given the award by Minister for Children and Families Nadhim Zahawi during a ceremony held at The Palace of Westminster and hosted by Radio 4’s acclaimed ‘Women’s Hour’ presenter Jane Garvey.
You might recall that SGlosPC reps were speaking to and giving a presentation to paediatricians at the launch of the Autism Care Pathway that had aims to better support families, improve and dramaically reduce the diagnosis process. We wrote about that event here if you want a reminder.
We have not been resting on our laurels as we found out that despite the well intentioned plan, our families were not seeing any improvement to waiting list times and the support they had been receiving as families. We have reps attending the autism working group who have been feeding back your concerns