Whether your young person receives DLA or whether you are looking into PIP for the first time, this information and quick tips guide could be invaluable.
Jo is just like so many of the parent carers that we meet in our support groups and in our online community. Her son has several diagnosed disabilities and like so many SEND parents was juggling a million emotional and practical issues. There was the journey of acceptance and dealing with her inner turmoil, adjusting expectations and fears for the future. This is alongside learning and implementing new behaviour management strategie and a new style of parenting and trying to access the myriad of services, each with their different contacts, appointments, thresholds and gatekeepers.
Let us set the scene, you have been parachuted into an unknown land without notice, the people around you are speaking a language that is unfamiliar and confusing, you didn't know you would be here so you weren't able to plan or prepare or buy that helpful Lonely Planet Guide for your journey. You know you have to make it to a destination and need the help of others to get there, but you don't know who they are, who is out there
The festive period can place big demands on time and energy, throw in with that the unchangeable challenges of a Parent Carer and there could be the recipe for burn out. We know all too well that you cannot pour from an empty cup, so how can we manage that stress and keep a sense of calm over the festivities?
At SGLOSPC HQ we know through experience the difficulties the season can bring. It is a season of fun but for some of our children, it can be a confusing and overwhelming time of change – school routines are off, the house may be decorated and look different with lights and sparkles and candles, all of which can be overwhelming to some children, not to mention a flow of guests and activities. What to do?