Mental health and wellbeing is a huge area of concern for many families within our community, so it is positive to see that there is a new Health in Schools Programme in South Glos ran by the Public Health and Wellbeing Team at South Glos Council.
You might recall that SGlosPC reps were speaking to and giving a presentation to paediatricians at the launch of the Autism Care Pathway that had aims to better support families, improve and dramaically reduce the diagnosis process. We wrote about that event here if you want a reminder.
We have not been resting on our laurels as we found out that despite the well intentioned plan, our families were not seeing any improvement to waiting list times and the support they had been receiving as families. We have reps attending the autism working group who have been feeding back your concerns
It is not an uncommon story in our community to hear of the challenges we face relating to paediatricians appointments, and so at every opportunity at health meetings we have been feeding this back, time and time again.
Sirona who have met with us and have been in attendance at health meetings and forums we have been representing you and our community at and have been taking note of what we had to say on your behalf.
We here at SGlosPC are trialling something new when it comes to being heard and making your views known. We really, really want to know your thoughts and views. We often get in touch with you about consultation events. As important and fundamental as they are, they can for some be offputting. They can come with many documents in Local Authorityese, a language not many of us are proficient in. Easy read versions might not be released and ready in time for the event you attend and they can for some be offputtingly formal or too structured and facillitated leaving little room for feeling like your voice is heard. That said, for others they are ideal .
We had an amazing wonderful day and were touched by the number of our community that turned out to help us celebrate and eat cake!
Not only did our community join us to explore the new community base and to give their great ideas on how they would like to see our community space used, we had a number of representatives from support organisations such as Supportive Parents and CONTACT and also team managers from some local authority teams such as Transitions and the 0-25 service who recoginise the work we do, how we have grown and what value we have in working co-productively with them to make posiotive changes for our community.
On Monday 19th of November we held the third of our pilot training workshops themed around behaviour. Our key message for the wonderful parents and carers who came is that all behaviour is a form of communication. All behaviour tells us of a need that is met if our child is calm and in a happy, feeling well sort of state or of unmet needs if they are reaching meltdown or entering shutdown.
Making services across health, education and social care better for those with learning disabilities, autism and or both.
Ask Listen Do is an NHS project all about making it easier for people with a learning disability, autism or both to give feedback, raise a concern or complain about their care, education or support. It is also about making it easier for family, paid carers or advocates to do this for someone they support.
It is a great project to know about as we have heard so much recently in the news sad stories and experiences about what can happen when those with learning disabilities and other needs are not listened to. Here is an easy read leaflet that explains further and for more information for organisations and practitioners as well as for the service users themselves, their familiy and carers.
You don’t know what you don’t know. So explore ahead of time what is out there.
Sometimes in life, we find what we want by experiencing what we don’t like, or something that meets some of our needs, but not all. We realise what we truly want is a combination of all the good stuff we experience put together in a new way that makes us the most content we can be.