Following the news of the propsed Resource Base consultation we knew that we had to be heard in this process and that any changes needed to be born out of co-production, engagement meetings and a consultation process that includes everyone who will be impacted by any changes as it reaches beyond parent carers to services and teachings staff amongst others.
We have won a national award for Excellence in Parent Carer Participation. We were nominated as part of CONTACT’s ‘Together at 40’ celebrations, and were given the award by Minister for Children and Families Nadhim Zahawi during a ceremony held at The Palace of Westminster and hosted by Radio 4’s acclaimed ‘Women’s Hour’ presenter Jane Garvey.
Parent Carer particpation is why we exist
Alongside the support we offer it is a big part of what our parent reps do day to day. We want to share with you a brief snap shot of the 2018 / 2019 year so you can see what key areas we have represented your views on and the meetings we attend with the feedback you gave us through surveys and through your comments.
This survey is for those who currently make use of short break services
Ahh short breaks, conjurs images of a relaxing stay in European cities; Venice, Rome or maybe Amsterdam. Alas sadly, this is not the short breaks we are discussing today. South Glos parents and Carers are part of a working group that is reviewing the short breaks services that are available to families of children with additional needs.
It feels very special that within the year that we celebrate our 10th anniversary and the year we realised a dream of launching our very own Community Base, we should be nominated for such a special award.
Our kids LOVE their tablets, laptops, consoles and computers, maybe more so than typical children. Many of our children due to their disabilities are particularly vulnerable and so need extra guidance when it comes to understanding online safety. This can be tricky as we don’t always know how to communicate the risks in a way our child fully understands.
You might recall that SGlosPC reps were speaking to and giving a presentation to paediatricians at the launch of the Autism Care Pathway that had aims to better support families, improve and dramaically reduce the diagnosis process. We wrote about that event here if you want a reminder.
We have not been resting on our laurels as we found out that despite the well intentioned plan, our families were not seeing any improvement to waiting list times and the support they had been receiving as families. We have reps attending the autism working group who have been feeding back your concerns
It is not an uncommon story in our community to hear of the challenges we face relating to paediatricians appointments, and so at every opportunity at health meetings we have been feeding this back, time and time again.
Sirona who have met with us and have been in attendance at health meetings and forums we have been representing you and our community at and have been taking note of what we had to say on your behalf.
We here at SGlosPC are trialling something new when it comes to being heard and making your views known. We really, really want to know your thoughts and views. We often get in touch with you about consultation events. As important and fundamental as they are, they can for some be offputting. They can come with many documents in Local Authorityese, a language not many of us are proficient in. Easy read versions might not be released and ready in time for the event you attend and they can for some be offputtingly formal or too structured and facillitated leaving little room for feeling like your voice is heard. That said, for others they are ideal .
We had an amazing wonderful day and were touched by the number of our community that turned out to help us celebrate and eat cake!
Not only did our community join us to explore the new community base and to give their great ideas on how they would like to see our community space used, we had a number of representatives from support organisations such as Supportive Parents and CONTACT and also team managers from some local authority teams such as Transitions and the 0-25 service who recoginise the work we do, how we have grown and what value we have in working co-productively with them to make posiotive changes for our community.